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In the interview, Mr. Johns repeated these statements. When asked if association officials have contacted Biogen since Medicare’s recommendation, he said, “I think some of our friends had a chat or more in the process,” and that Biogen staff “transmits information from time to time, but I can say this.” Because we are not coordinated with them.”
In the recording, association officials told advocates that their annual meetings with local members of Congress will contain different “questions” than usual: They should ask lawmakers to give a speech, write to the CMS, or post on social media to promote Medicare broadly. Covers Aduhelm and other FDA-approved Alzheimer’s treatments.
One official, Jennifer Pollack, suggested that advocates give congressional staff a “leave behind” with a sample letter and social media posts prepared by the association, and “exemplary talking points for a speech.”
Kate Johnson, another official, told lawyers: “If you don’t know the answer to a question, it’s okay.” In this case, he said, “please always go back to our safest phrase,” and “I’m not sure, but I can escalate this question to an officer at the Alzheimer’s Association who can provide more information.”
It also urged advocates to take photos or screenshots of congressional meetings to post on social media, tag an MP To show that we won’t give up on what we’re passionate about.
Advocacy director Christopher Masak portrayed the son of an Alzheimer’s patient meeting with an MP.
“My mom is living with a terminal illness and I want more time after all” “It just breaks my heart to think of people like my mother who can’t access this medicine,” her character said.
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