[ad_1]
In January, his doctor, Alexis Thompson, of Northwestern University, told him that he no longer had sickle cell disease.
“It’s strange to think he has a future,” said Mr Hubbard.
“I’m getting more serious about life,” she said. “I didn’t think I’d have a life.”
Helen is also adjusting to life as a healthy person – pediatric hematologist Dr. A change observed by Alexander Ngwube in sickle cell patients treated with bone marrow transplant.
“Remember that they’re more hospitalized than sickle cell disease,” he said. “There are too many restrictions in their lives. They get depressed and when they get a little older they realize that their lifespan is 40 years. ‘What’s the point of doing something?’ they begin to think.”
When they recovered, he said, “it’s almost the world they’re going to play.”
Dr. When Esrick told Helen the good news a year ago, Helen lay quietly on the examination table, not daring to speak.
Helen and her family have since moved to Lawrence, Mass., Mesa, Ariz. I have been following her development for over two years. A lifetime of stoicism had taught him to keep his feelings to himself. He barely spoke to me during a rough month in the hospital for gene therapy. Even after it was completed, she touched and gestured to her mother’s arm when she was walking through Boston’s Faneuil Hall Marketplace when she asked for an ice cream cone.
He recovered from the disease, became much more extroverted. On summer weekends, she dares to go to an arcade and water park and go tubing.
[ad_2]
Source link